The TOTS Project

Tiered Online Training and Support (TOTS)


We create research-driven tools for parents of young children with developmental delay or disability.

Join Our Community!

Receive free information, learn about research opportunities, connect with resources.

Parents:
Providers:

Parents spoke. We listened.

Parenting any preschooler is tough. Parenting a preschool aged child with a developmental delay or disability has some unique challenges.

Parents want tools that are effective and that promote positive outcomes for kids – and for the whole family.

TOTS meets parents where they are, providing tailored training and supports as needed.

The TOTS program

  • Helps you understand your child's difficult behaviors, so you can learn how to reduce them
  • Teaches you to engage with your individual child, improving connection within your family
  • Offers strategies to help your child learn new skills
  • Provides families with access to information tailored to their family needs

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TOTS provides tiered support tailored to parent needs.

TIERED supports get more comprehensive as parents report what their child and family needs.

ONLINE content is delivered in short, engaging, modules that fit into your day.

TRAINING is based on evidence of what practices really work.

SUPPORT is designed to address what parents really need.

  • Tier 1:

    We teach strategies to improve the most common behavior problems -- like tantrums, bedtime struggles, and picky eating.


    These strategies really work! TOTS is based on scientific evidence of best parenting practices that promote positive parent and child outcomes.


    Our parenting expert, special-education researcher Laura Lee McIntyre, has spent years adapting these practices for parents of children with developmental delay or disability. TOTS is now developing this important training to be delivered entirely online!

  • Tier 2:

    Sometimes a personal touch is needed for families to work through tougher problems.


    TOTS has built-in personal coach-supported training and teaches positive coping skills to reduce stress.

  • Tier 3:

    When more extensive supports are needed, coaches provide individualized referrals to local specialists.


    Assessments are embedded within the online program to identify the supports best suited to each family.

Meet the TOTS Team

Ann Glang

Ann Glang, PhD, is a Research Professor and Director of CBIRT. Since 1987, she has secured and directed or co-directed over 30 federally funded research projects focused on individuals with TBI, including both descriptive and intervention research projects. Her research interests include strategies and supports in the school setting for children and adolescents with brain injuries, teacher training and childhood brain injury prevention. She has published numerous articles in refereed journals, edited two books on her work with children with TBI, and co-authored five manuals for educators serving children with TBI. Dr. Glang was awarded the 2011 Researcher of the Year award by the North American Brain Injury Society. Dr. Glang has also led the development of a range of SBIR-funded health education programs, including Brain 101, a concussion education and management program for high schools.

Laura Lee McIntyre

Laura Lee McIntyre is Department Head of Special Education and Clinical Sciences and Professor of School Psychology. Her research interests include autism; early identification and treatment of young children with or at-risk for developmental and behavior disorders; transition to kindergarten; family well-being; and parent-professional partnerships. McIntyre is a Board Certified Behavior Analyst (BCBA), certified school psychologist, and board licensed psychologist. She has professional experiences in both school and hospital settings. Prior to joining the faculty at the University of Oregon, Laura Lee McIntyre was a faculty member in the Psychology Department at Syracuse University and an affiliated faculty member in the Center for Development, Behavior, and Genetics in the Department of Pediatrics at SUNY Upstate Medical University. She has been at UO since 2009.

Shari Wade

Shari Wade, PhD is the Site Director at the Cincinnati Children’s Hospital Medical Center. Dr. Wade’s research over the past three decades has been supported by grants from the NINDS, NICHD, NIDRR/NIDILRR, CDC, NIMH, and PCORI. She has authored more than 200 peer-reviewed publications on pediatric TBI and other chronic health conditions in childhood and given hundreds of regional, national, and international presentations. Since 2002, Dr. Wade has conducted federally-funded research on the efficacy of telehealth interventions to improve outcomes for children with TBI and other neurological conditions. She has directed 9 randomized controlled trials, including 5 multi-center studies. Beyond the current project, she has funding from PCORI to clinically implement the Teen Online Problem Solving program for TBI at 10 centers across the U.S. This implementation project exemplifies her commitment to using research findings as a foundation for intervention, training, and wider dissemination/clinical implementation.

Christina Karns

Christina Karns, Ph.D., received her doctorate in Neuroscience from the University of California, Berkeley. At the University of Oregon, she has directed neuroimaging projects with children, teens, and adults with and without disability to clarify how attention and self-regulation support healthy neural development. This work has provided foundation for evidence-based interventions that utilize the neuroplasticity of emotions and cognition to support people in positive and healthy interactions with society and each other.

Laura Beck

Laura has worked at CBIRT since 1999 on a variety of information management, educational research, and service-related projects. She has an MLIS from the University of Missouri. Laura provides comprehensive reference and information management services to Principal Investigators (PIs) and project staff as well as day-to-day management of the organization’s research compliance activities, web presence, and social media sites.

Jody Slocumb

Jody Slocumb received her BA in Journalism and Communication from the University of Oregon. She had eight years of experience on a wide range of social science research projects before coming to CBIRT in 2013. Jody has primary responsibility for data management and subject recruitment. She also coordinates program development activities, assessment, helps maintain contact with all research partners and assists with dissemination activities.

Dane Ramshaw

Coming soon.

Ilka Riddle

As the director of the University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD), Ilka Riddle, PhD, is responsible for achieving the four core functions of a UCEDD: interdisciplinary training, community services and collaborations, research and information dissemination. UC UCEDD achieves its goals through the Leadership Education in Neurodevelopmental and Other Disabilities (LEND) interdisciplinary training program; community partnerships on self-advocacy, transition, employment, housing and healthy living; research on transition and sharing of disability and other relevant information with individuals with disabilities, family members, caregivers, health care providers, state and community agencies staff, policy makers and legislators. Dr. Riddle participates on a variety of state advisory and task forces to provide technical assistance on disability, conducts research on health care transition, engages with the national Association of University Centers on Disabilities (AUCD) on disability-relevant topics and works with local, regional and state partners on a variety of initiatives to improve community integration and inclusion of people with disabilities.

TOTS Advisory Board

We need a range of diverse voices for this important project to be successful.

This is why parents, self-advocates, and service providers are helping us develop this program by serving on our 21 member project Advisory Board. Members in Oregon and Ohio meet quarterly throughout the first two years of development to provide feedback on emerging themes.

Their input will shape our program and help families with young children with developmental delays.

Ohio

  • Amy King
    Professional
  • Annah Korpi
    Parent
  • Brittany Gerber
    Parent
  • Crystal Daffner
    Parent
  • Deitra Wilson
    Professional
  • Leslie Brown
    Parent
  • Marty Eckes
    Self-advocate
  • Megan Stone-Heaberlin
    Professional
  • Tina Stanton-Chapman
    Professional
  • Karen Burkett
    Professional

Oregon

  • Alexis Reed
    Parent
  • Blake Hodgetts
    Parent
  • Chelsea Clinton
    Parent
  • Emily Quinn
    Professional
  • Florien Deurloo
    Professional
  • Judy Newman
    Professional
  • Maureen DeLongis
    Professional
  • Nicholas Crafton
    Self-advocate
  • Todd Woodward
    Parent
  • Tambrea Aguas
    Self-advocate
  • Tyler Wood
    Professional

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Contact TOTS

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